Does NOT, by any means, mean that I am medically illiterate, or unknowledgeable about what is going on within my own body. And as such, I DO NOT appreciate the disrespect and belittling I received while trying to find a diagnosis for my movement disorder, so I can get on a treatment plan which might actually BENEFIT my health, as opposed to the "throw drugs at it until something works" method which is so rampant in the health care system.
I saw the neurologist yesterday.
She told me my symptoms were psychosomatic, and with the recent tragedy of my grandfathers' passing, I would benefit more from a psychiatrist than a neurologist.
She told me it was all in my head.
I wanted to smack her.
My Hubby came with me to the appointment, and he said he would have walked out of there within 5 minutes because of the way she was talking to me. But he stayed. Moral support and all that.
She contradicted herself with every other sentence.
She said that if there was any problem with my brain, they would have found it on the MRI, or with the blood tests. Because "If I can't see it, it doesn't exist." (Not a direct quote, but close enough)
The only thing she did agree with me about was getting off the Clonazepam. I have 2 more pills, and I'm done with it for good.
I asked her if she could write me a referral for the MAYO clinic in Arizona, and she said she would.
I am still waiting for one test, which she ordered 2 months ago... An EEG... And we'll go from there.
The experience was entirely frustrating, and exhausting, and if I NEVER speak to her again, it will be too soon.
She also stated that even though she didn't see me when I was hospitalized, she doubts the diagnosis of Truncal Ataxia, even if it was drug induced... I was seen by SEVERAL neurologists, and interns, and they ALL agreed it was Truncal Ataxia while I was in the hospital... It's like this lady is in her little diagnosis bubble, and if it's not something SHE can diagnose, then obviously, it doesn't exist.
Joe, The Email, And What I Have to Say
1 day ago