I saw a spiffy new doctor today. She specializes in Tourette Syndrome, but is also a neurologist, and she knows more than a thing or two about movement disorders! Yay!
Based on my history, I do NOT have Tourette Syndome.
The preliminary diagnosis is either Myoclonus, or Dystonia.
Good news: They both (generally) respond well to Clonazepam, which is what I have been prescribed. I am starting on a very low dose, and over 3 weeks, I'll (hopefully) be up to a dose that will do some good. She will be setting up a follow-up appointment with me in about 6 weeks to see if it's working, or if we need to seek alternative treatment options.
While I was there, she also said she arranged for me to be tested for Epilepsy, to see if the Myoclonus (if that's what it is) is Juvenile Myoclonic Epilepsy.
She also believes that the diagnosis of Truncal Ataxia was wrong, and that it was probably generalized Dystonia which sent me to the hospital. Speaking of which, she told me that would have been more "normal" had I been prescribed dopamine inhibitors instead of a dopamine agonist. Just another thing that I don't do "normally." I seem to have the polar opposite reaction to a lot of things.
Ooh... Just read up on the side effects... They include "paradoxical reactions" so this time if I have the opposite reaction to the drugs, it will at least be expected. I think this bodes well for me.
P.S. Spell check is absolutely useless for medical terminology.
That's What It Means
1 week ago