Okay, so I've been on Clonazepam for a week and a half, and I'm currently half way to the dose I'm working up to. So far, I'm extra sleepy. As in, I just had a week off work, and I spent on average 12-14 hours in bed every night. Not so good for the joints.
I've also been falling a lot. Once, I was trying to get to the kitchen to make myself a glass of iced tea, and I fell at least 6 times in a row. Another time, I fell so many times, I gave up on walking, and just crawled. The falling is weird though. Sometimes it feels like a balance issue, or a blood pressure issue, sometimes it feels like a dislocation issue, and sometimes without warning, I'm significantly less vertical than a moment before, with no discernible cause.
A while ago I stumbled on a website for some awesome shoes, and I finally kicked myself in the pants, and bought them. I don't generally spend money on non-essentials for myself (yarn is exempt from this, because I make things for other people with it) and I already spent about $150 on new shoes and expensive insoles at the beginning of winter. Back to the point. I bought myself some Vibram Five Finger shoes. They are the best feeling shoes I've ever had. They allow me to feel more when I'm walking, so it's improving my balance, and co-ordination a bit. They also force you to walk like you would barefoot, which is good. That's how we were born... It's how we evolved... BAREFOOT. So yeah, that's me for now.
Oh, I also bought a back roads map of Alberta, because I am determined to go hiking this summer. DETERMINED. I will take braces, and ice packs, and heat stickies, and Benadryl, and bandages, and everything else I could possibly imagine needing. And I will carry it in a properly fitted backpack with hip straps to supplement the shoulder straps. And I WILL do it. (Right now I'm mentally sticking my tongue out at EDS... Mocking it the way it's mocked me my whole life)
Unremarkable Remarkable Freedom
1 day ago