Thursday, September 9, 2010

3 out of 6

I've used my cane 3 days out of the last 6. I'll probably need it later today as well.

I'm afraid again.

Is this a new page in the book of my life, a new chapter, or a new book altogether?

I know we EDSers take ridiculously long to heal sometimes, and a "permanent" injury can heal months or years down the road... But it would be nice to have advance warning which type of injury something will be.

I honestly thought my shoulder would have healed after I sprained it in 2006. It didn't. After about a month of healing, it stalled. That's all the better it got. It feels better some days than others, but for the most part, it feels like it's a fresh sprain more often than not (who knows, I might re-sprain it every other week).

After 6 months, I had almost given up on my ankle healing. Wearing a brace for that long is worrisome. But (I'm still not sure if it's related) when I started the one set of pills, my ankle was almost miraculously healed.

The twitching seems to be less frequent than it has been since January. Still injuring my left side when I twitch, but not as bad as I've been used to.

I wish there was a set rule. Either heal, or don't heal, but some sort of consistency would be nice. I never know what to expect. The constant changes in my abilities are unsettling. I want some normal. Some same.

Right now, it feels as though someone is stabbing me in the hip with a screwdriver...

4 comments:

Saurou said...

I know exactly what you mean with expecting something to heal and it just stalls out at sorta-better and is always one wrong step away from slipping right back to the way it was. Ugh. I'm so sorry you're having such a crappy time recently. Hope things start looking up.

BubbleGirl said...

Me too. Thanks.

because it all matters said...

::gentle hugs::

EDS SUCKS!

Flexability is over rated, creativity is ingenious said...

just keep swimming,swimming,swimming...a bowl of ice cream always helps too :)