It got so bad that I had my hubby take me to the emergency department.
The neurologists, doctors, and nursing staff thought I was an interesting case.
One of the nurses said I was scary... That I'm 22, otherwise healthy, and I presented with such a debilitating case, which came on so suddenly.
What caused the truncal ataxia? The medication I was on to relieve the upper chest/shoulder spasms. Apparently I am extremely sensitive to dopamine... The main ingredient in the medication.
So, I've been admitted to the hospital, and they've run numerous blood tests, and looked at my MRI results from before.
There was apparently an anomaly on the MRI, and I'm waiting to speak to the neurologist to ask what it is. Apparently it's in the wrong place to be causing any type of movement disorder.
The neurologist, after weaning me somewhat off the medication, and finding that I am almost miraculously cured, jokingly said that he should put me back on the meds and videotape me, because I had a "perfect presentation of truncal ataxia, and it would be beneficial to have video of it."
Once again I was the object of much showing off. I had, I believe, 2 neurologists, 3 med students, 2 MD's, and numerous nurses looking at me, checking my reflexes, asking me questions, and watching with astonishment as I jerkily; haltingly took a few unsteady steps. They also had me put my arms in front of me like a zombie, and close my eyes... Only to catch me a half a second later, as it became obvious that I had NO BALANCE WHATSOEVER WITH MY EYES CLOSED.
So far, since having my dose cut in half, the upper chest/shoulder spasms have not come back, and the neurologist would like to see them before I am discharged. I seem to be at a happy medium right now, except for some continuing instability and balance issues.
So I still have no diagnosis for my original problem, but the worst seems to be over, and that's a start.
Joe, The Email, And What I Have to Say
1 day ago