So I'm trying to find information linking EDS to the spasms/twitching/tremors that I'm experiencing.
I type "ehlers danlos syndrome twitching" and the first result that pops up is... ME... MY BLOG... This one... As nice as that is, it doesn't bloody well help me. I'm apparently the best source of information on it according to google, but I'm entirely useless to myself.
So I tried "ehlers danlos syndrome tremors" and the first result is not even close to what I'm looking for, it's talking about them in an unrelated way, and the second response is again, me.
Third time's the charm? Let's try: "ehlers danlos syndrome spasms" the first result for that one is a blog by a lady that suffered leg spasms- not entirely helpful- not what I'm dealing with. The second result is entirely unhelpful information for massage therapists. The third result is me- again.
I'm entirely frustrated at this point.
I have however found that what I'm dealing with appears to be tremors. Possible types of tremors include: dystonic tremors, cerebellar (intention) tremors, or psychogenic tremors.
Again... entirely unhelpful, at least without a diagnosis.
At this point the most likely diagnosis based on the information I can find would be MS.
This is not a comforting thought.
On a lighter note, I have been baking... I made banana bread muffins, macaroons and brownies on the weekend. I made more banana bread muffins last night, and a really good beef stew. And I've been crocheting cute little dresses which should hopefully fit my youngest niece by summer.
It makes me feel like a grandma. I'm not even a mom.
Edit: Since posting this, I am the first result on all three of the things I typed into google. Aren't I the smart one?
3 days ago