Faith in the System

Mine has been somewhat restored!

Today was my annual appointment with my geneticist. He listened to my concerns, he agreed that I was NOT a hypochondriac, and he had a light bulb moment of insight as to what may be barring my path with TTC.

He is sending me for an MRI to check if I have Chiari, blood work to check my kidney function, iron levels (I appear to still be anemic), thyroid levels, and to see if I have Celiac's disease.

I will be scheduled for a follow-up appointment in 6 months, or as soon as the MRI is done, whichever comes first.

He also said he'd send me for a skin biopsy if my previously diagnosed "nickel allergy" rash doesn't go away by the next time I see him. (So far it's been "treated" with steroids, anti-fungals, antibiotics, antihistamines, and something else...? Most of which had no effect, and the steroids made it worse.)

So the "light bulb moment" was that my kidneys may not be allowing my body to absorb (enough of) the iron I'm taking, which would, combined with other things, render me infertile to some degree.

I think I need a tailor...

My body feels like it doesn't fit. Things feel like they aren't where they should be, or that they shouldn't be where they are.

I'm feeling less and less co-ordinated, and more and more off balance.

I don't know where I am.

I can look at my hands, tell them to pick up a cup of coffee, and watch them wander aimlessly for a while, before finally grasping it. Then there's the journey from the table/desk to my mouth... Then tilting it just enough to get the coffee in my mouth, without spilling it all over myself.

I feel like a toddler. Independent, confident in my ability to do everything by myself. Sure of my feet. But as an in independent onlooker, people can see that I can't do it all myself. I can't drink from a big kid cup, or walk without stumbling into things, unless I support myself against a wall, or counter.

I was supposed to be past this stage in my life. I already mastered the art of walking, graduated from a sippy cup.

Where will I be in 10 years? Will I have to go back to Velcro shoes? It doesn't seem too far-fetched.

Pretty Hats

It's Delurker day!!! If you're a lurker... Come out, come out wherever you are! ;) Tell me something interesting about you! Or just say hi. Or even "moo" for all I care...

On with the post:

So, I love how blogger randomly throws pictures wherever it feels like throwing them, regardless of how you upload them, which order, etc... But I do have photos, and they are uploaded, and they're hats! Yay!

The first one is my best friend's son's hat, and it's brightly colored camouflage, and it's too big for him, but SOOOOO cute when he's wearing it.




The second one, purple with the flower was meant to be for my niece, but it's adult size, and I don't know anyone who would wear it...
The orange, pink, green, and yellow one was for the gift exchange at my dad's family's Christmas. It was labeled as a Gag/Girl gift, and was well received.

The purple, purple, blue and green one went to my best friend for Christmas, as it is much warmer than the one I made her for her birthday.

This one is dark blue, and grey, with a grey edging. In the right light it looks like it's blue and silver. It went to one of the ladies in my hat club, and she LOVES it. (YAY ME!)

My current projects include searching for yarn to make my hubby's sweater, and crocheting 2 baby blankets for little ones set to arrive sometime this month. One blanket is for a boy, and it will be green and blue wavy stripes. The other one is for a girl, and it will also be wavy stripes, but they will be alternating between solid orange, and a confetti looking white/orange/white/green/white/blue yarn.

EDS update: Between under-sleeping, and not having any energy, and oversleeping to wake up with multiple dislocations, I have managed to be late for work twice this week. I think it's the hormones again... Seems to be worse (A LOT WORSE) on the days just after I ovulate (tmi?).

Edit: The more I try to fix the placement of the pictures and text, the worse it seems to be getting, so what it looks like now is about the best you'll get. Sorry.

I Win!!! (So do you, 'cuz you get PICTURES!)

So, I've had my pictures sitting on my desktop for almost 2 weeks. I tried in vain to upload them 174 times! My computer kept giving me error messages. I FINALLY figured out why I was unable to upload them TODAY... Grrr...

So without any (more) further ado...

(NOT) My brother's sweater (but one just like it-only a little smaller). This one got sold to my co-worker. He gave it to his daughter for Christmas, and she didn't take it off for 4 whole days!
Next, My friends' ridiculously long scarf (hard to tell from the picture, but it goes to the floor when it's wrapped around her neck once).

Next is my niece's bunny. BUNNY!!! He's a secret bunny, he has 2 big ears, so you can tell him your secrets, and no mouth, so he has to KEEP your secrets!

BUNNY! BUNNY! BUNNY!

And then, the blue bear, with his wobbly head... And his pretty orange scarf!

That's it for now. More pictures hopefully tomorrow... They'll be HATS!!!

Happy New Year!

I know, it was yesterday, but... What can I say? I've been busy. I cleaned my house... Well, half of it.

I was just reading a post over here, and it gave me an idea for a post.

I love the idea of a bucket list instead of new year's resolutions.

My list of things I need to do at least once:

Going to the mountain my dad and I used to go to every summer. There are ice caves in it. I've never been able to get past the point called "The Chimney" and I want to do it so badly. Ever since my dad passed away it's been my goal. The problem is with EDS I'm usually broken in July and August, which are about the only months you can go to the ice caves. It doesn't help that about 10 years ago there was a fatality there (drunk people with no cell phones should NOT be mountain climbing) and since then they've made it an additional 7km hike just to get to the base of the mountain.

I want to go rollerblading again. I wasn't able to last year because of the unseasonable heat, and then my ankle when it had finally cooled down.

I want to travel in Europe with my husband. Backpacking. It would be a lot of work, and I'd be in pain 24/7, but I think it would still be worth it, to have that experience while I'm still well enough.

I've always wanted to go bungee jumping, but that one will never happen. I would probably end up in a full body cast... :)

I want to go horseback riding. Last time I went, I was thrown off, and dislocated my hip, some ribs and a shoulder (When I was 8 I was thrown off, and I broke my shin in 3 places). Oddly I'm not afraid of horses, but sitting on them causes all types of uncomfortable.

I want to be an inspiration to someone.