tag:blogger.com,1999:blog-7719452176286774578.post3417454799734853220..comments2023-03-22T07:06:56.967-06:00Comments on Ehlers-Danlos Syndrome-Deal With It: Can we ban the use of invisible sledgehammers?BubbleGirlhttp://www.blogger.com/profile/00932935674980101062noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7719452176286774578.post-9116215605197283892011-08-30T12:48:20.453-06:002011-08-30T12:48:20.453-06:00Please make sure you have a good chair. "copi...Please make sure you have a good chair. "coping" isn't good for us. <br />My muscles twitch too. I drink powdered magnesium.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7719452176286774578.post-52655923516513485472011-06-30T21:27:26.387-06:002011-06-30T21:27:26.387-06:00The twitching is normal for us BubbleGirl, I get i...The twitching is normal for us BubbleGirl, I get it every once in a while it last for about 3 or 4 days if it's a small muscle a couple of of minutes to a couple of hours if it's my arm or leg, and that asshole with the sledgehammer stops by my house a couple times a week. P.S. we all cope and make the best of life.Josh Wagnerhttps://www.blogger.com/profile/07544888246534061665noreply@blogger.comtag:blogger.com,1999:blog-7719452176286774578.post-16152148832218744742011-06-27T14:10:01.287-06:002011-06-27T14:10:01.287-06:00I have an appointment in August with a third movem...I have an appointment in August with a third movement disorder specialist/neurologist. That isn't inludng all the specialists/interns/gawkers that all poked and prodded at me in the hospital, and it is also in addition to my doctor, my new doctor, and 2 random walk-in doctors. I am so very frustrated. <br /><br />As to coping, I do it because I must. If I stopped coping, I'd probably end up in the fetal position on the floor somewhere screaming until I lost my voice. <br /><br />Good news is: three day weekend!!! It's Canada Day on Friday!!!<br /><br />Hugs to you too, and thanks as always for the comment, it really makes my day!BubbleGirlhttps://www.blogger.com/profile/00932935674980101062noreply@blogger.comtag:blogger.com,1999:blog-7719452176286774578.post-8423575222188662492011-06-25T16:33:14.114-06:002011-06-25T16:33:14.114-06:00I thought I had posted here but obviously not. I ...I thought I had posted here but obviously not. I just want to say. I just cannot believe that the whole twitching thing has not yet been helped yet despite all the tests etc. I wish so wish you could find some relief from this, it must drive you mad. I simply do not know how you continue to cope. The whole invisible sledgehammer thing I understand and offer empathy and a very gentle virtual hug. If only the blogosphere could offer, relaxing, wonderful, free, holidays.<br />Take care.Acheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.com