tag:blogger.com,1999:blog-7719452176286774578.post2494662246038475..comments2023-03-22T07:06:56.967-06:00Comments on Ehlers-Danlos Syndrome-Deal With It: I Miss Saturdays...BubbleGirlhttp://www.blogger.com/profile/00932935674980101062noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7719452176286774578.post-26879032978250708542011-12-31T16:15:15.575-07:002011-12-31T16:15:15.575-07:00My husband has EDS and a lot of your issues are ve...My husband has EDS and a lot of your issues are very similar. It took nearly a year to diagnose. We've done all our own research and after firing one doctor for literally threatening to commit him (she couldn't get past his anxiety), we finally found one who at least isn't too arrogant to listen to our opinions. Now my husband is dealing with the twitching and shaking you mention. He has his first neurology appointment in 3 weeks. I don't know what I'm trying to say here, besides thank you for sharing your experiences. It makes the rest of us feel a little less alone.trishahttps://www.blogger.com/profile/13494365370820092421noreply@blogger.comtag:blogger.com,1999:blog-7719452176286774578.post-825546206454566902011-08-10T13:34:54.393-06:002011-08-10T13:34:54.393-06:00Oh, and I had a customer at work growl at me... Li...Oh, and I had a customer at work growl at me... Literally. He asked me something, and I told him no, politely, and with the reasons behind it, and he just looked at me, said "Grrrrrr!" and stomped out. It was kinda cute. So was he ;)BubbleGirlhttps://www.blogger.com/profile/00932935674980101062noreply@blogger.com